jumping hoops

It feels like a never ending job to jump hoops.There always seems to be yet another person one needs to convince that you know what you are talking about and that you know what your children need.
It is frustrating to no matter how many trainings/therapies and diagnosis there is always some professional who wants to say well you need to try harder.

I love my kids but I am not part of the organic/genetic equation and the disabilities are what they are --the wheels on this train started to roll way before we ever came into the picture.
  Often I would like to say I am trying to be part of the answer not part of the problem.

procrastinating

I keep erasing this for a week.
Zach has had a rough few weeks we have been adjusting some of his bipolar meds and had to have him admitted to the hospital just to have a closer eye kept on things. 
This week has been full of medical updates ,school work and appointments. 
Soon we will be running up to Plymouth for Liza's immunology appointment so I can get trained on how to do the injections from home.
I never know how much to share and I don't want to sound like I am complaining either.
This is the life God chose for me and while somedays are hard I am thankful for my kids.


I read a book the other day and it talks about how special needs families need to learn how to tell friends and families what it is we need from them.It goes into how intimidating our world is and how they feel helpless and clueless on what to do for us.


I get so caught up in "running my life" that I forget that if I asked for a specific thing that maybe I could lighten my load some.


Assuming people can read  your mind just doesn't always work.

at last

I have been meaning to sit down and write this for a week now,

The first week of school was rough and hopefully it will improve .

 I seem to have writers block lately -I'll have great ideas and then when it come time to sit down and write the moment has passed.

Summer is over

Well in a few short hours both my  kids will start school. I love the fact I can be part of their learning with them here online. I used to cry when school started and Zach had to go to school --I love our good days -our days of laughter /games -the off days with bipolar rages and Liza's chronic infections they get to be trying .I pray that we get through this ... I send warm thoughts and prayers to all parents with the upcoming school year especially to those of special needs kids.

Zach is  nervous tonight -he has paper ready to go and is excited about starting ...
Liza's told us tonight she was going to work hard in 'garden....

Tasha

No longer will we hear your howl or talk to us,the other day I thought I heard you ,I turned to only remind myself you would never greet me again.
We know your pain is gone but our is not ,you were more then the family pet you were part of us.
No longer we will see you play dolls with Liza and allow her to dress you with hair bows,when she would be upset you used to put that big Samoyed head on her lap and smile and comfort her.
Zach would take you for walks and you would lay at his feet while he watched tv.
We went to Camden and it won't be the same without following your big fluffy tail and how you would look back at us with your smile as if you were saying what is keeping you.
You were an amazing friend - my morning coffee isn't the same without you sitting by me and flopping your paw or nudging me with your nose bumping my cup .
You maybe gone but not forgotten

Spinning my wheels

I have several ideas in my head but not sure how start any of them... I wonder if that is how Zach feels daily.

Yesterday was a great day .. a typical non-stress day.... We have made a Rabbit Care chart which seems to help--it has helped alot to get some organization on things.


Today so far is a lighthearted morning ... Zach doing dishes ,Liza playing with tractors....

last night

I was listening to Bruce helping Z with his chores of sweeping off the basement steps and sweeping the basement floor.Z has a hard time with sequencing of steps-in theory he understands that task at hand but things get muddled up inside and he can really have a hard time.Coordination of holding the broom/dust pan and getting it to dump in the bag can be a challenge .
I could hear it in Bruce's voice he was trying hard to stay calm and break steps down for him.In both Bruce and my past we have been incharge of training co-workers for our jobs and we did pretty well both of us had been told we did a good job. But when it comes to our kids and their brain injury /executive function there is little we can do. We can remodel and work with them but the cards are dealt.