United
The silent voices of the young need to be heard. Many special needs families spend all of their resources in taking care of their children. Unless you have walked in our shoes it is not understood just what our days hold. Many of get little sleep do to either feeding tubes,medical needs or our children don’t sleep. Some of our kids have rages from past traumas or illness. We don’t buy new furniture because we know that it will get destroyed.
We take our days one minute at a time for we don’t know if our children will need to go to the hospital or will have a rage and we will have to cancel all plans to comfort them.
Some of our closest friends are the therapists or other caregivers. We know we speak a different language them many.
While many of us never take vacations because our children’s appointments have burnt them up. Many times we are lucky to get alone time with our spouses due to no one to watch or kids.
With all that said we love them with all or hearts. Even though they hurt us they lie to us and we have sacrificed everything for them. Some of our kids will never say they love us some will never return home once they graduate.
They are our family and we don’t regret loving them.
With that said as rules change and guidelines get tighter our world gets harder.Then we worry at night how to meet our kids needs.When we have given all we can it is hard to know where else to tighten up at .
My fear is and I would hope it is a concern in the government also is what is the future for these kids and the other kids who are waiting for forever family.
