jumping hoops

It feels like a never ending job to jump hoops.There always seems to be yet another person one needs to convince that you know what you are talking about and that you know what your children need.
It is frustrating to no matter how many trainings/therapies and diagnosis there is always some professional who wants to say well you need to try harder.

I love my kids but I am not part of the organic/genetic equation and the disabilities are what they are --the wheels on this train started to roll way before we ever came into the picture.
  Often I would like to say I am trying to be part of the answer not part of the problem.

procrastinating

I keep erasing this for a week.
Zach has had a rough few weeks we have been adjusting some of his bipolar meds and had to have him admitted to the hospital just to have a closer eye kept on things. 
This week has been full of medical updates ,school work and appointments. 
Soon we will be running up to Plymouth for Liza's immunology appointment so I can get trained on how to do the injections from home.
I never know how much to share and I don't want to sound like I am complaining either.
This is the life God chose for me and while somedays are hard I am thankful for my kids.


I read a book the other day and it talks about how special needs families need to learn how to tell friends and families what it is we need from them.It goes into how intimidating our world is and how they feel helpless and clueless on what to do for us.


I get so caught up in "running my life" that I forget that if I asked for a specific thing that maybe I could lighten my load some.


Assuming people can read  your mind just doesn't always work.

at last

I have been meaning to sit down and write this for a week now,

The first week of school was rough and hopefully it will improve .

 I seem to have writers block lately -I'll have great ideas and then when it come time to sit down and write the moment has passed.